Mini Boots has hit a snag with his Speech and Language therapy. When he came up for a progress report, we realized he is technically performing at the average level (can I get a woo woo?) The range is large and he is on the very lowest end, but it's still average. What I didn't know is unfortunately once you hit that range, our insurance will no longer cover his services. So our insurance isn't paying and our IEP sill isn't complete, which means we aren't getting services there either. The out of pocket cost to provide Language therapy is astronomical, but the alternative is letting him fall behind. As I parent I am not sure how to reconcile letting that happen, or how to accept going broke paying for it ourselves.
So I have been talking to people. Turns out I have some amazing friends who work in healthcare that spent a LOT of time trying to find a loop hole. (Thank you!) I read each medical jargon laden page of our plan and am officially an expert in "maintenance services." I posted it on my facebook because you never know who knows someone who can help. I begged my therapist to provide me with a home plan. And since she totally rocks she even gave me some extra time in our session to help me navigate it. So even though we are being proactive, I am discouraged, and pissed and about to bust out a stiletto. But as I have been talking to everyone about this, scrambling for help, what has been the second most irritating about this is the moronic things people say...
Here it is. My list of things never to say to a Mother of a Special Needs Kid:
1. "He doesnt look any different."
No. He doesn't. Surprisingly neither do you but there are obviously problems going on there.
2. "Do you work with him at home?"
No. We don't. We do however, let him watch the boob tube ten hours a day. And give him an endless supply of junk. Oh and we never talk or read or play with him. Ever. I'm sure it'll just go away eventually.
3. "My kid has the opposite problem. He's so smart."
Really? Well too bad he didn't get it from you or you'd realize having a Language/Learning disorder doesn't actually mean he's stupid. Too many big words?
4. "Well my kids was like that and it went away sooo..."
Look, either you're in denail or you're dumb. Now I'm leaning towards the latter because at some point you can't dig fast enough to keep your head in the sand. So your kid is either still struggling with his disorder or with the fact his Mom is an idiot. Poor kid.
Mini Boot's might not be able to articulate it but I can: My kid is smart and deserves all the world has to offer. No one will stop me form getting it for him. Not even the morons.
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